Kyle's 77 Cutlass

Kyle's 77 Cutlass

[QUOTE=MDchanic;624411]I don't want to be annoying, but I just have to ask:

Have they had Kevin see a geneticist yet? (My money's on "No.").

If the answer is "No," then you can see how the root of your whole problem is some bonehead's insistence that you see an irrelevant specialist before any other care could proceed.

He is getting some indepth testing next .week. They will figure what is going on

Kyle's 77 Cutlass

It's an unreal place. Doesn't even feel anywhere close to a hospital

Kyle's 77 Cutlass

Well we are still down here in rochester. We have a couple of consultations tomorrow, hopefully we can get a hint of what is going on.

billmerbach

I've been keeping up with this thread and we have are search paper in English and you should not have to pay a lot because the doctors up at mayo have no incentive to do extra test because they are salaried and plus they sit down for hours at a time if needed and discuss the options you have good luck

Kyle's 77 Cutlass

They are great doctors here. In no hurry to push you out the door. We have to main doctors taking care of him. Has another 3 that are specialists that are taking care of him as well. They all meet and discuss his situation and make a decision on which way to proceed. Then talk it over with us. Such a great place here. Very glad we brought him here

mdh157

I hope you get a clear diagnosis......like several have said, you cannot find a more qualified group of doctors than at Mayo.

Prayers are with you, I cannot imagine having to deal with a serious and unknown problem, esp with a child.

Also very interesting to hear of a pitfall with the one payer system, I was in Italy recently and 2 women I met told me the wait for an MRI is approx 6 months. I had to have one and only had to wait 1.5 weeks.

Kyle's 77 Cutlass

Thankyou for your prayers. I know it is very silly to live in Canada and have to wait that long to see a specialist. Some people are trying to get clinics set up for MRI or cat scan which one would have to pay for. This would speed up the process quick back at home. For some reason the government doesn't want this to happen, so we suffer.

Kyle's 77 Cutlass

Well we seen the pediatric orthopedic surgeon doctor this morning, some changes to his schedule. MRI is coming up and an appointment with a rheumatologist. They have come 2 conclusions so far.

MDchanic

So, Orthopedics and Rheumatology. Good. Now you're getting somewhere.

What are the two conclusions?

- Eric

Kyle's 77 Cutlass

They are thinking a bone infection or juvenile rheumatoid arthritis. The tests will show they hope

47 Convertible

The difficult thing in medicine is diagnosis and diagnosis is a process where doctors work by ruling out possibilities until they are left with only one or two possibilities --kind of like Sherlock Holmes. It can be a frustrating process because there are usually several possible diagnoses for a given set of symptoms and it takes time to sort through them

Hang in there. Lots of us are praying for your family and particularly your son. Mayo is the best place for now. Once the diagnosis is known, If there is a better place for treatment of your son I'm sure they will tell you and make a referral on your behalf.
Jerry

tm70olds

Hi Kyle,
I just notice this forum. I wished I would have found it when you first posted.
I have a office here in Rochester that I work out of. If you have the time give the office a call and ask for Tim. 507-288-7665
Hope all is going well

Kyle's 77 Cutlass

Kelvins diagnosis is moving along at a good pace. If we were back home, still be waiting for genetics and that is 6 to 9 months. Sounds they ruled this out. Who knows, back home would take 2 years to get an answer. Here 2 weeks and it seems close, that is more acceptable. We are very happy with the service Kelvin is getting, he's just upset with all the blood samples they have to take. He is hanging in their like a champ.

Kyle's 77 Cutlass

Het Tim, it was nice to talk with you. Hope to see you Friday

Kyle's 77 Cutlass

Well MRI day for my little champ,hope this gives an inclination of what is going on with Kelvin. Guess we will find out this afternoon when we meet with the doctor

dnmfranco

I really hope for the best for your son and sending prayers.

If it is juvenile arthritis there is remedies, I had it when I was 7. Same symptoms as your son. This was in 72 and they have made incredible strides since then.
I was treated successfully and pray the same for your son.

Sincerely Dean

dnmfranco

Also please let me know if donations are being accepted for your family.

Kyle's 77 Cutlass

Thankyou for the hope. Yes oldsman 72 started a thread (helping out a member). You can contact him

Kyle's 77 Cutlass

So here is Kelvin's progress for the day. MRI at lunch, appointment with doc, fluid around the ankle, xray again to compare the 2. Then the champ showed up again, they removed the fluid from his ankle. They pulled out 7 cc's which they say at the most they pull out is 2 cc's. Sending that away for test's too see any infection. Tomorrow we are hoping to see rheumatology, this is the next step. We are hoping to skip the bone test with this. Fingers are crossed

Kyle's 77 Cutlass

Here is the scoop on Kelvin. We have a diagnosis on Kelvin, he has juvenile arthritis. They tested the fluid from his ankle, normal nucleated cells is 150, his registered almost 24000. Way over normal. He got his last needle today for a few months, they injected cortisone into his ankle this afternoon. Didn't like this but he got er done. We will be back in April in Rochester for a checkup. We hope to see Kelvin have a turnaround in a week, guess we will see. We are very glad it isn't more serious then we thought. We thankyou CO for helping us these past couple of weeks with prayers and donations. Once we get back home and settled in, will have a better thank you

jaunty75

Very cool all around. Glad it was something apparently simple.

dnmfranco

Best of Luck to your son. I have somewhat of an idea what he is going thru, granted 40 years ago when I was diagnosed w/ it. Wish the best for your family and have a great holiday - Dean

citcapp

Happy and relieved that you found out what is going on. Sounds like something they can hopefully control with medication. Best wishes to you and your family this holiday season

Pat

billmerbach

Its great to know he will doesn't have a more serious illness. Happy Holidays

47 Convertible

What Pat says. Bring us up to date in April please.
Jerry

tru-blue 442

Glad to see they found the problem.
Hopefully they can come up with the cure for him.
Have a Merry Christmas Ya'll.

MDchanic

Great news! I'm glad you finally got a definitive diagnosis.

I feel bad for poor Kelvin having to put up with this for months.

I'm still mystified by the original demand that you see a geneticist first. You had a kid with a swollen painful joint. Any idiot would point you toward an orthopedist and/or a rheumatologist, both of which you finally saw this week, and got your diagnosis in short order.

Feel free to call the idiot who sent you to the geneticist an idiot to his face.

Merry Christmas!

- Eric

Kyle's 77 Cutlass

Did you have to change your eating habits or anything that you found to help you through this?

dnmfranco

Well from what I can recall the focus was protein.
Its such a deja vu, hearing your son's story , I fell down couldn't get up in hospital for 2 months until an Indian Dr came and saw me. Never ever will forget his name Dr.Kavarajan .
He said good diet and exercise. But I had to get constant blood tests for years to see if it was present again.
So my guess unless things have changed he will need blood work.

It sucked but honestly have not had a set back since then.
Went on to play sports into college and lead a normal childhood except for that period.
I hope that helps, also does your little guy like mini OLDS die cast cars?
Please send me your address in pm - Dean

Rocket331

I, too, am happy to learn there has been a diagnosis. While every case is different, at least they now know what to treat. I hope your travels are safe and your Christmas most blessed!

Kyle's 77 Cutlass

Now this works better. Was trying to use a tablet




This is the kicker. My wife brought Kelvin to a pediatric orthopedist back home. Looked Kelvin over and said he is flat footed and has hyperelastic muscles and this was his problem. He said insoles for his shoes and braces would solve this. Then sent to childrens hospital in Winnipeg, thats where genetics came in. Well they are wrong. Good thing my wife didn't listen too them and I thought of Mayo. Couldn't image waiting over a year for this diagnosis

sammy

x2!

garys 68

Sad state of affairs if that is typical of the Canadian medical system.
Glad they have it figured out.

Professur

These aren't your garden variety idiots .. they're Canadian health care specialists ...

Good luck with getting the Canuck medical machine to accept that US doctor's diagnosis. I had a friend with all the symptoms of Lyme ... Nope, no Lyme here. Went just south to NY, diagnosis ... Lyme. Gave her a prescription and treatment schedule ... brought it back up here ... refused by the Canucks. I hope your doctors are more open to being shown they were wrong.

11971four4two

I hope you have had a safe journey home. It was really nice to meet you and your family. Have a very Merry Christmas

Kyle's 77 Cutlass

Ditto, you have some beautiful olds. Thankyou for the gifts for Kelvin. Wished we could of stayed and visited a bit longer. We will do that when we return in April. Have a Merry Christmas and a Happy New Year.

Kyle's 77 Cutlass

Yes we think we will have a battle ahead of us. That's why we are going back to mayo in April. I have a hard time to trust these doctor's up here. My wife will plow them over if they think this is a joke, she's a grizzle bear protecting her cub. It is brutal that we pay for a system up here and it takes months to get anywhere if we do. In our case, weren't getting anywhere so we took matters into our own hands. After this experience with our system, I am getting very irritated with our Canadian Government. I really want to tear a new #sshole into some people right now but I have to stop cause of forum rules. With our experience down in Rochester, I am prepared to start a new life in the US.

Paladin31

Kyle I've been following your progress through this ordeal and you and your entire family are in our thoughts. While I'm glad you have the diagnosis! I don't envy you and your wife's uphill battle with bureacrazy, let alone medical bureacrazy. Last thing you need to do is prove a Dr that they are wrong... Been there, done that. As many others have said this is the last thing a family needs go through In This time of year. Wishing you all the best, Brett

Professur

When our system works, it works miracles .... when it fails, it fails spectacularly. The schools are the same thing. Unfortunately, as they say, all the other systems are worse. We're here for ya. If you need to vent, I'll fire up Skype and you can let loose. I know the value of release. You'd be amazed at the modern art you can make when you've a couple of hammers, a pile of old computer cases, and a lot of anger to burn.